I don’t want to understand this horror There’s a weight in your eyes I can’t admit Everybody ends up here in bottles But the name tags are the last thing you wanted As the world explodes you fall out of it And you can’t let go because this Will not go away
There’s a house built out in space
And I can’t see the thief that lives inside of your head But I can be some courage at the side of your bed And I don’t know what’s happening and I can’t pretend But I can be all, be all
Someone help us understand who ordered This disgusting arrangement of time and the end I don’t want to hear who walked on water Cause the hallways are empty, clocks tick As the world implodes we fall in to it And we can’t go home because this Will not go away
There’s a house built out in space
And I can’t see the thief that lives inside your head But I can be some courage at the side of your bed And I don’t know what’s happening and I can’t pretend It’s a long, long get away, it’s a long, long get away Make it home again, make it home again
It’s a long, long get away, it’s a long, long get away
And I can’t see the thief that lives inside your head But I can be some courage at the side of your bed And I don’t know what’s happening and I can’t pretend But I can be all, be all I’m here But I can be all, be all I’m here It’s a long, long get away”
Songwriters: Arnold Lanni / Michael Maida
Death is a thief; we are all it’s takings.
Death does not care if you are rich.
Death does not care how popular you are
Death does not care how young or old you are
Death does not care how loved or hated you are
Death does not care for pain or peace
Death does not care about the colour of your flesh
Death does not care about what gods or goddesses you worship
Death does not care how much you fight it or not
Death does not care
Death is. Nothing more, nothing less
Death comes for all, no matter the shape, size species or form.
I, and many others I know, have suffered too many losses in the last few years. It seems to be one hit after another, old, young, healthy, disease filled, awful or angelic. We lost them all.
I’ve always loved this song. I know it was written for a young girl with a brain tumor. From Wikipedia – “Vocalist Raine Maida has stated that the song was written about a young Kitchener girl that he knew named Mina Kim who had an inoperable tumor in her brain. The “thief” mentioned in the song refers to the tumor. The short clip at the end of the song consisting of a young girl singing a Sunday school song is a real audio clip of Mina Kim singing “Little By Little” with Maida‘s wife Chantal Kreviazuk and band member Jeremy Taggart.”
To me, that Thief can represent so many things – illnesses, heartbreak, loss, emotional trauma.
Just remember you are never alone, even when you feel you are.
“Man cannot discover new oceans unless he has the courage to lose sight of the shore.” ― André Gide
Hi, my name is Gwen and I am addicted to my aquariums.
75 gallon community
Ares in his 9 gallon home
I was afraid to get back into this hobby. The more I researched, the more intimidating it was. It is no where near like it was back in the 1980’s – back then you put a fish in a tank, no filter, no heat – just plucked them in and did a full change of water when it was bad enough. I cringe so much writing, and reading, those words.
Step by step, through trial and error, I have grown live plants in all three aquariums. All three have LED lights; the largest having the atypical tube light. All three have happy inhabitants that have come to expect food by a certain time and the largest aquarium even shows signs of wee fry.
I love watching the fish swim around and interact. I’ve persisted through the problems that have cropped up. I do lose an occasional fish now and then, but the population I have now is quite stable.
I enjoy cleaning the aquariums, seeing results from my efforts of care. I get a sense of purpose and joy from it. These beautiful creatures, born into a market that uses them as disposable, are now in my care. I will do everything I can to love and protect them for their natural lives. I do the same for all the creatures in my home. My budgies have more than what is required, my bearded dragon as well. My cats and my dog – all of them, receive the best care I can give them, and sometimes more.
If I can make the effort for all these beautiful creatures, why is it so hard to do the same for myself?
Well, I’ve again dipped my feet into a new ocean and am losing sight of the shore I once clung to. I’ve finally taken a leap I had always wanted to, but was afraid, no, anxious to do. I’ve become vegan. This is huge for me both mentally and physically.
My health has not been very well. My doctor actually recommended I go vegan in an effort to help. I’m overweight. I have depression and anxiety. I could go on. I started my animal free eating more than a week ago – not long, but enough to feel a difference. In this short span of time I can already sense a difference! Mentally, I feel sharper and more ‘awake’. Physically, I feel less tired – my MS fatigue has always been horrible, but this last bit it’s not as bad. I’m still tired, but it’s not as intense. I’m not really sure if I can explain it well.
I know veganism is not for everyone. I would never enforce my dietary needs/wants on another, but I am so glad I finally did this. I’m not sure what I was waiting for.
Here I go, tending to myself finally. Here I go, swimming away from the shore of what I was towards who I really want to be.
In the meantime, my aquariums will always call to me…
“Chiquitita, you and I know How the heartaches come and they go and the scars they’re leaving You’ll be dancing once again and the pain will end You will have no time for grieving Chiquitita, you and I cry But the sun is still in the sky and shining above you Let me hear you sing once more like you did before Sing a new song, Chiquitita Try once more like you did before Sing a new song, Chiquitita”
– Benny Goran Bror Andersson, Bjoern K. Ulvaeus (ABBA)
This song really hit home. Today most of all.
When I was a teen, I lost my best friend. She was murdered. Today, 26 years ago.
I realize this song is not about death, but the sentiment is the same. I danced again, I went on with my life. Some days are harder than others – life happens, it’s not always fair or kind. Sometimes life is brutally cruel, so much so that you see yourself on a high precipice waiting for the wind to waft you over the edge. But life can be wonderful too.
This week has been hard. Between migraines, teens, issues for family and friends that make me want to wrap them all up in the biggest hug I can, it’s been hard.
But there are always slivers of those silver linings. I’m knitting a goat for a friend and I am loving the way it is turning out, even though it is a crochet pattern! My baby boy (I still can’t believe he is 3!) has been so affectionate and sweet that my heart feels fuller than ever. Even my teens seem to be having a better week as well. Money is tight, but when isn’t it.
I discovered my Charlie ‘girl’, is actually a Charlie BOY LOL! I had a great giggle over that surprise last night (he’s maturing into a juvenile and it just became obvious last night).
Then today hits. The anniversary of when life changed for myself and my group of friends. It really brings into focus all that I have to be grateful for. I have three really healthy kids. Sure, the older two have difficulties – but they are healthy. I have an amazing husband who is always by my side, yes, he has Parkinson’s – but it’s NOT a death sentence. I have been sick a lot, sure, but I am finally losing weight and keeping it off! I am more active and can see the changes in me! I can knit – wow, that alone I a big deal for me! Just a few short months ago my hands hurt so much that I couldn’t!
I often wonder where Pam would be now had she lived. She would be 40 going on 41 in October. Would she have kids? Would she be around here? Considering I am still friends with the others from our group, I like to believe her and I would still be very close today if she had lived. I bet she would still be larger than life – gawd she was so full of life!
I miss you Pam. I think of you often. I think of your sister often and hope that she will have no more hardships, she has had enough. I miss your mom. I miss laughing with you and just talking. I still remember your voice, our last phone call.
I wish you could see us now – me, Gena, Rhonda – I like to think you do, and that you check in on us. Our ‘band’ was never the same without you.
Sometimes I look at my life, my world, and I wonder how in the ever loving fawk I ended up where I am.
I love my family. I love them so much that it literally hurts at times because of the stress that I am under.
I had an ache deep in my chest most of yesterday. I spent most of the day crying, dealing with school and mental health for one of my children. I felt defeated all day. My child has a huge heart. My child means the world to me (all my children do). My child has broken my heart more times than I care to recount and has challenges that may never be solved.
Any parent of a high needs child can tell you that, as caregivers, it is often a thankless, stressful position to be in. You KNOW that they love you and you love them unconditionally, but their needs take precedence over so much of your life that other areas falter and fail. Burn out is common, exhaustion, stress born illnesses are common as well.
Changes are need – it’s hard. Oh gawd, I know it is hard. You HAVE to take time for YOU. No matter how infinitesimal, no matter what it is – you need to take that time and embrace it. No more guilt. Guilt is often a frequent emotion for parents.
I began knitting (again) as a form of ‘me’ time. I may not always get out of the house, but I can sit, watch Doctor Who, and knit and I feel at peace. It is my meditation, my time. It’s not a huge change, but change doesn’t always have to be! Baby steps.
Working towards a healthier me is also a step I have taken – eating healthier, going to bed earlier, getting more exercise. What seemed impossible just a few short months ago is so, so possible now! I’ve started to (FINALLY!) lose weigh after years of struggling, though I’ve had health challenges lately, in general that is improving too!
Make sure you have a support team – even if that is a team of one! You NEED someone. You can’t be the rock your child needs if you are crumbling to dust…Even mountains need a foundation to build on. I’m so fortunate that I have an amazing family network and friend network. There is ALWAYS someone I can talk to.
Let it out. Holding in that pain and hurt from your day will only make you feel worse and takes a toll on your health. It’s a hard lesson to learn, and I took the long way to learn it. I hold very little back anymore. It’s a change that I have learned with time.
Love yourself. This is one change that I am still struggling with. It is needed, and is probably one of the most difficult ones.
Let others help. Sometimes letting go is the most amazing thing you can do for your child. Allowing someone else to guide them is sometimes the most important thing that can happen. It sucks ass. As a parent, you want to be the ONE. That isn’t always possible.
I’m tired. I think that is all I have in me for today. If my advice helps even one parent of a special/high needs child than I am grateful and happy for it.
“Yes: I am a dreamer. For a dreamer is one who can only find his way by moonlight, and his punishment is that he sees the dawn before the rest of the world.” ― Oscar Wilde, The Critic as Artist
“Those who dream by day are cognizant of many things which escape those who dream only by night.” ― Edgar Allan Poe, Eleonora
I couldn’t pick which quote I wanted more today. They are both so apropos.
I dream big. I fear big. This causes an unending stream of anxiety and depression with massive ups, and terrible downs.
I love to create. I love knitting, reading, crafting, writing. My body, though, hates me. My wrist cause painful numbness in my hands (carpal tunnel), my back and neck crick and crack (osteoarthritis in my upper spine), my hips bemoan me (bursitis, sciatica – I fell down some stairs almost two years ago and still have not healed). My knees snap and crackle with derision (possibly arthritic), my feet prickle and groan when I walk (plantar fasciitis), and the mind grows exhausted; ever fighting the good fight (Multiple sclerosis).
I still dream big. I dream of being so healthy that not even my kids can keep up. I dream of hiking again in the woods, following what ever deer trail presents itself. I dream of creating creatures from clay, writing my ever more distant novel, completing a tome of poetry. I dream of recording myself reading to my youngest, singing lullabies, rocking it out at a concert without needing a seat close by.
I dream of being free of anxiety and fear. Confident in every stride I take, every word I write, every thought spoken.
I dream that this year I will finally find a way to make it all happen. That the pain, fear, anxiety, exhaustion will all fall away with the spring rains, and never return.
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